Thank you all so much for praying for us as we were in NYC. Evan was great and is doing well after the treatment. It took about 25 minutes from start to finish and he acted like nothing happened. We were able to see both Dr. Fay and Dr. Waner (who is world-renowned, by the way) and they did the surgery together. Both men are definately gifted by the Lord in this area. It takes a lot to decide to specialize in vascular anomalies. It's not really glamorous, and lots of times insurance doesn't even cover it. We were so blessed with how gentle both men are with Evan (not even touching him if they have cold hands, and letting him tug their lab coats). He gave them both huge smiles when they came in!
It broke our hearts to see some of the other children there at the hospital, who have walked roads with hemangiomas and vascular malformations and ... that make Evan's experience look like nothing. There was one girl there who was on her 26th surgery, and she was only 4! How blessed we are to walk this road that God has put in front of us. He gives us the grace to walk through what He's given us. I couldn't imagine having to go through what some of those other parents and their children have had to. There are some kids with Evan's sort of thing who are in life-threatening situations because their heart can't keep up with the demand that the tumor is placing on it. What would it be like to be in that situation? I can only imagine. There are days that I feel a little overwhelmed with doctors and things, but then I read articles like these about Dr.Waner and am reminded how blessed we really are!
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